What is Haemophilia?

People born with haemophilia have little or no clotting factor. The less clotting factor the body produces, the more severe the haemophilia and the more likely a person will suffer from frequent bleeds with some bleeds being spontaneous or without a clear cause.

Haemophilia is a hereditary bleeding disorder with the first warning signs including severe bruising and prolonged bleeding.

If you have haemophilia, you will bleed for a longer time than others after an injury. You can also bleed inside your body (internally), especially in your knees, ankles, and elbows. This bleeding can damage your organs and tissues and may be life threatening.

There is no cure for haemophilia; it is a chronic illness that will affect a person for their whole life.

A bit about HFNZ

Established in 1958, Haemophilia New Zealand continues to serve the needs of New Zealanders with haemophilia and their families through education, support, and advocacy, outreach Service, camps, workshops and education grants. Because haemophilia is a lifelong condition our educational programmes have been developed to target each stage of life, including Young Families’ Camps, Youth Camps and Women’s Workshops to ensure these brave individuals have the tools to grow and face the future with confidence.

Learn more...

Promoting excellence in haemophilia care, education, advocacy & support to all people
in NZ with bleeding disorders and their family/whanau.

Hi, I'm Harland, I am 5 years old

I was born with severe haemophilia which means my blood does not clot so I bruise really easily and the bruises don’t go away on their own, they just get bigger and bigger unless I have a treatment. This means I need an injection every 2 days to put the stuff that’s missing back into my blood. I hated having needles stuck in my arm cause it hurt so much and I cried a lot so the nice doctors installed a port under my skin so now injections don’t hurt at all!

I live with my mum and dad and my older brother and am always looking for adventures. I can do most things my brother does but I have to be very careful not to get hurt so I wear lots of helmets, knee pads and gloves. I even have a special emergency bag in the office at school in case I have a accident.

Mum says that all the help we get from Haemophilia New Zealand is only possible because of really nice people like you. I wanted to tell my story to you so you could see how much you are helping people like me to live my best life.

Your donations invest in these worthwhile programmes
and make a positive difference for so many lives.

Adult Wellness
Family Camp
Children's Education
Youth Camps
Women's Workshop

“More than anything, I loved the chance to meet up and connect with other haemophilia families.”

HNZ is dedicated to improving the lives of people with haemophilia and related bleeding disorders; but we cannot do it alone. Only with the generous financial support of caring New Zealanders can we make a difference.

We need your help to continue.

Contact Us

Email: hnz@donatenow.co.nz   |   Freephone: 0800 820 382

Contact Us

0800 820 382