Haemophilia Foundation of New Zealand

What is Haemophilia

People born with haemophilia have little or no clotting factor. The less clotting factor the body produces, the more severe the haemophilia and the more likely a person will suffer from frequent bleeds with some bleeds being spontaneous or without a clear cause.

Haemophilia is a hereditary bleeding disorder with the first warning signs including severe bruising and prolonged bleeding.

If you have haemophilia, you will bleed for a longer time than others after an injury. You can also bleed inside your body (internally), especially in your knees, ankles, and elbows. This bleeding can damage your organs and tissues and may be life threatening.

There is no cure for haemophilia; it is a chronic illness that will affect a person for their whole life.

A Bit about HFNZ

Established in 1958 the Haemophilia Foundation continues to serve the needs of New Zealanders with haemophilia and their families through education, support, and advocacy, outreach Service, camps, workshops and education grants. Because haemophilia is a lifelong condition our educational programmes have been developed to target each stage of life, including Young Families’ Camps, Youth Camps and Women’s Workshops to ensure these brave individuals have the tools to grow and face the future with confidence.

Promoting Excellence in Haemophilia Care,
Education, Advocacy & Support to all people in NZ
with bleeding disorders and their family/whanau.

Meet Super Seth

When Seth was diagnosed with haemophilia at 14 months old it came as quite a shock to his parents, Erin and Nathan.

Haemophilia is a rare medical disorder that affects the body's ability to form a blood clot and stop bleeding. Although haemophilia is usually hereditary, in around a third of cases, such as Seth’s, there is no family history. Seth was diagnosed after falling at preschool and getting a cut in his mouth that just would not stop bleeding. After several hours Seth was rushed to hospital for treatment; and tests revealed that he had severe haemophilia A.

Seth had shown no real signs of haemophilia as an infant and seemed a perfectly healthy, happy baby. As he began to crawl he developed lots of bruises, but these had been dismissed by their general practicitioner as nothing serious...

Your donations invest in these worthwhile programmes
and make a positive difference for so many lives.

Adult Wellness
Family Camp
Children's Education
Youth Camps
Women's Workshop


More than anything, I loved the chance to meet up and connect with other haemophilia families.

HFNZ is dedicated to improving the lives of people with haemophilia and related bleeding disorders; but we cannot do it alone. Only with the generous financial support of caring New Zealanders can we make a difference.

We need your help to continue.

Contact Us

haemophilia@donatenow.co.nz
freephone 0800 820 382